The actual death experience

Yesterday's post may have rocked your world. It certainly rocked mine. This is the continued story of that day. Its on the after side of my life. You should be warned, it's just as hard to read as the previous story. That was near death. This is actual death.

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It's not like I grew up believing babies didn't ever die in childbirth. But you feel like its a thing that is being pushed to the past. That medicine is able to help us so much more. I know there is logic and things happen. It just doesn't ever seem like a thing, until you are in that moment wondering what just happened. 

When you are in a room you recognize. The delivery rooms of the hospital. You took a tour of the hospital 7 years ago. And this you know, is the very farthest corner room. It is one of the biggest and there is stuff in the corner being stored because it is not used as often. We are in it out of kindness. We are as far away as possible, from the sound of a baby actually being born. We are in silence. We are in Stillbirth. 

This is the hour that I got to experience real shock. Where the human form is so stripped of its being that all you are is a beating heart. And that makes you very aware of the unbeating heart in your life.

The nurses were still trying to get my blood condition under control. I continued to get transfusions in this room and the next. I remember thinking, "I don't know why I've been so afraid of needles my whole life, because they are all over me right now." I remember talking to Brandon but I don't have any idea what about. I can see me in that bed, and where he was sitting to my right, and talking to him. He tracked down a nurses charger for my phone because it was almost dead. And he knew, I didn't have my camera with me, and we were only going to get hours. He was preparing for what I didn't want to face. 

They asked if we wanted to see her. 

And my first answer was no. 

I wasted one hour because I didn't know what was worse.
Seeing our daughter in death.
Or not seeing her at all. 

There is nothing that can prepare you for this moment. Everything in life will tell you, pregnancy leads to a baby. I have had two pregnancies. Both have had high risk issues. Both my babies have gone to the NICU immediately after birth. And then both were brought to me, completely safe and fine. That is what my brain knows as fact. 

This is stillbirth, and there is no making sense of it with fact. 

We decided together when the time was right. And someone opened the door and from the hallway wheeled in one of the hospital bassinets. The clear walls of it showing a child inside. And then they handed her to me and I met my daughter for the first, and last time. There is a photo that exists of this moment. And I don't think the world could handle the raw emotion of it. My words pale in comparison. It is the most real photograph of a human, I have ever witnessed. 

She was everything I thought she would be.

She had curls of hair all over her head. I silently thought to myself, "I knew you had hair, I've had the heartburn to prove it since 8 weeks." I was so excited she had hair, and at the same time, how unfair it was that I would never get to braid it, or put bows in it. Or see if those curls stayed like her moms. I touched them, I can still feel them in my memory. 

Her fingers were long. Her little nails that I had dreamed of painting. I asked right before she arrived, how soon was too soon to paint tiny nails. I couldn't wait to share that joy with her. I couldn't wait till she would one day ask to paint mine, and the polish would be more on my skin than my actual nails. I let them wrap around my finger. They curled over it like a baby naturally does. But they never moved on their own. 

Her feet. They are my favorite feature on a baby. And they were the only part of her skin that still held color. The first thing you will ever notice on a stillborn baby, is that their skin has no color. But her feet, they still looked normal. I hated and loved that at the same time. 

Her features of her face were delicate and feminine. She was beautiful. I remember the doctor saying when he delivered her, how beautiful she was. She had Max's little nose. And Sawyers lips. She was their sibling. And I could see it. But they will never see her. I will never know if she shared their eye color. If her belly button was an innie or outie. I will never know if she was going to be plump like sawyer or scrawny like max.

She will never change. I will never know what could have been. As parents we like to say we wish our kids would stop growing up. But if you ask a mom who has lost a child. They will tell you, they wish with all the world that they could grow up, even one more day. 

I knew I did not have one more day. I had 12 hours and they are the fastest 12 hours of my life. Somehow an hour before, 40 minutes stretched a lifetime. And now the hours were melting away. I can see in the photos on my phone, that there is hours where my body simply gave out. And her and I are sleeping in each others arms. It is painful to see after I cannot change it, how much I missed. 

I only asked for one thing. The entire pregnancy I had dreamed of one experience I couldn't wait to have. It wasn't about the clothes or the bows. I wanted a baby to lay on my chest, when they snuggle into your neck. Their legs tucked under. I just wanted to cuddle her. I love the newborn stage the most. And I could not wait for those long awful nights where they wont go back to sleep and you end up laying on the couch with them on your chest. Its so simple. I just wanted the most simple memory in life, and it was being stolen from me. 

So I held her, and I was so careful moving her to my chest. I felt like she was so much more fragile than a baby who is breathing. I was so afraid to hurt her. Feeling like I had already been the cause of her life cut short. I wanted her to know that she was loved, and I felt like I could somehow comfort her in that moment. But I was only comforting myself. 

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I watched Brandon hold her. He swaddled her and the nurse made a comment about how he was a pro wrapping her up. My heart might have broke even more in that moment. We know what a baby is like to hold. The weight of a child who is still, is unbelievably heavier. I saw my husband, a grown man, silently let the tears slip off his cheeks. He tried so hard not to let me see them in those first days. Because we both knew we were only adding more, and more heartbreak to each other.  

Then my mom arrived. I remembered thinking, how is it possible that she is here? She lives in another country, and she just walked in the door. Anna is still in my arms. It's another thing that fate let land in the only way possible. Somehow in 9 hours, she found out, packed, and booked a flight, travelled internationally, and was here. And she is one of three people who got to hold Anna. We have a single photo of 3 generations of women together. I am holding my child not breathing, and my mom is holding me. It is gut wrenchingly beautiful. 

Someone brought the only 2 newborn sleepers I owed. Both pink. A color that I am so sensitive to now, when I lived for it the day before at the baby shower. And a single pink bow. I have tiny pink outfits that range from newborn to 24 months. Neatly washed and folded, put away in drawers waiting for her. And these are the single two outfits she will ever wear. One in the hospital with me, in photos, that I could not give up. And the other sleeper, the one that she was supposed to come home in, little hello's all over it, that she was cremated in.

We sent my mom home to be with the boys. They were blissfully unaware at what had just happened to our family. At how close they came to losing their mom. And we wanted to spend the last hour alone with Anna. The clock continued to click, and a nurse kept pressing us to make the decision. It was after midnight.

May 20 had come and gone. And taken so much with it. 

And then the moment came. That my daughter left my arms, and never returned. And there is simply no human way to describe that moment. It is every intensely horrific thing you can begin to imagine, and that doesn't come close to the feeling of stillbirth.

Having to say goodbye, before you said hello. 

with love, lissa.

***A friend of mine who works in the NICU started walking me through the day. She gently prompted me to do things I would never get the chance to do again. She was with me from "I haven't felt her move in awhile," to "you need to have someone bring you clothes and a headband, you want to have that experience and memories." And she still texts me every couple days. I will never be able to thank her enough for making this experience slightly easier. Please hug and thank your nurse friends. Your doctor friends. Your midwife friends. They see and feel so much more than the joy you think they have in the job of delivering babies. They knew before me, that his happens too much. 

Madison

I have been waiting to share this story on a day when I needed it most. 

Like many moms I joined a babycenter birth board when I found out we would be expecting in June. I was mostly silent, this was my third baby and things progressed how I expected them to. I read it a few times here and there but didn't make my presence known. 

On May 20 I got my daily email at 8pm about all the topics being talked about. The birth announcement thread was beginning to take off as babies don't stick to time lines. You are allowed to post birth announcements there, even in stillbirth. I posted a photo of the daughter I loved so much, she had just left my arms for the last time. I wanted the world to know she was here. She was just here, and now she was gone. 

"We lost our sweet baby girl Anna today. I hadn't felt movement and drove myself to the ER. By the time I got there, I passed out in L&D, and almost died by minutes of making it there. Im currently stable but high risk. And poor Anna didn't make it. Im trying to wrap my head around how this happened. We just celebrated her baby shower yesterday. I think Im still in shock. She was so loved. And we never got to say hello."

I don't remember writing these words. Much like when I go back to re-read telling close friends and family. My mind has placed scars over some experiences, and though you can feel them, you don't remember them. These words I wrote, I can see the pain in writing them. So in shock and somehow needing the world to know them. I felt compelled that night to write just a piece of Anna in that place. A tribute and a warning in one. 

On June 11 I received a message on instagram, from a stranger, on baby center. 

"Dearest Alissa
I came from the June board on babycenter. I just want to express my deepest sympathy. I struggle to find the words to express something that is too horrible for words. Im so sorry, I'm just so so sorry for your immeasurable loss. I have been thinking of you every day since I saw your birth announcement on May 21"

I replied, "Don't take  a single moment for granted. I wish so much I could be up all night with her crying. Treasure it all." Those were the darkest days for me. The shock wearing off. And seeing everyone around me continue to be blessed with healthy arrivals. I was not bitter or angry about it, I had twice been that person who is blissfully unaware of the heartache of child birth. Not knowing that for ever 99 babies who comes home, there is one family that leaves the hospital with empty arms and an even emptier heart. 

I did not expect a reply, my response had been so bleak and cold. Whispers of regret filled what I thought was a message of knowing child loss and realizing how precious those first hard days are. Instead another message came up. 

"I promise you that not a moment goes by where I am anything other than grateful. I saw your comment on the birth announcement thread and a few hours later, noticed that my own sweet girl was not moving. I hesitated for a moment about going in, wondering if I was overthinking, but I thought back to seeing your post that morning while in the bath -(This is the same thing that made me notice Anna not moving) And decided to go in. Your comment on that thread likely saved my baby's life. Madison came quietly into the world on May 21, not breathing, with a true cord wrapped tightly around her tiny little body. I lay in the OR praying and praying while they worked on her. The silence was deafening. She was in the NICU for 10 days due to complications. As a result of her dramatic entrance into the world. But she is home with us now. I have thought of you and Anna consistently and shed tears for you. Thank you for sharing your story on baby center. And continuing to share it here. I will pray for strength for you as you attempt to heal from this unfair blow, while still being a mother to both your boys, and a wife to Brandon."

I was sent back to moments of shock. Here was this baby thousands of miles away, I will never meet. And my story, Anna's story, saved her life. The blood drive is honoring the idea of saving lives, but here is an actual account of one child's loss being another child's first breath. I can't explain the comfort I find in that. But it is immense. I was brought to tears. Both happy and sad. That I have to live this life, and feel her absence every minute of every day, but also for happiness that in such a short amount of time, Anna's life, or lack there of, has changed SO many people's lives. There has been so many stories shared with us over the last month. Each one touching a unique space in my heart. A single stitch as it tries to mend itself. 

On dark days, like this weekend, as we continue to creep forward to a date I once loved, and now dread. I like to remind myself of these stories. Of all the people Anna is saving. She is a genuine guardian angel. Seeking to repair the world. Ours is shattered as we miss her beyond words. But around us, people hear her name, filled with so much love, that it is actually changing the world for the better. 

madison

Madison will follow the exact life milestones that I would have had with Anna, born hours apart. Never to meet in this lifetime. A reminder of what could have been. That seems like something that should hurt my broken heart. But instead, I know, she is here living those milestones, because Anna could not. Instead of two mothers bonding over the same loss, there is one that is spared that grief. I have one guardian angel watching over me. And I have one life here on earth to count as hers. 

Thank you Dana for not remaining silent. Telling me you didn't have the words to take away my pain. But giving me a gift in sharing your own daughters life. And letting me share this story when I need it most, to forever remind me that even in my worst days, there was still overwhelming goodness in the world. Because of Anna. 

with love, lissa

it wasnt supposed to be like this

I woke up to an email this morning. Reminding me that we were 3 days away from the blood drive. Seeing the number somehow changed it. I have been working on and planning this blood drive for so long, 5 weeks. That until today, its not really sunk in. 

On June 23 I would have been picking my mom up from the airport. So she could help me get the house in order before we brought a baby home. I would have been packing my hospital bag and putting that special outfit inside. I would have been making everything perfect, the last stages of nesting. I would have been going out for dinner with Brandon, talking about all the fears of the upcoming week. Adding a 3rd child to our family. Talking about the excitement of a girl. I remember all of these feelings from the days before Sawyer & Max. I was so ready to do them again. 

It wasn't supposed to be this way. 

I am supposed to be days away from a baby. My brain can't reverse that thought. The last weekend as a family of four, has turned into grieving as a family of 4 only. I can see my empty stomach in the mirror but my mind keeps thinking maybe it's all a mistake. That feeling of wondering what other parallel universes are out there, I am trapped in one. I want desperately to get back to reality. My reality where none of this happened. 

On my calendar in big black PERMANENT marker, "Baby Arrives 3pm!!" 

Instead, we will begin a blood drive and Brandon will be the first donor at exactly 3pm. I didn't think or plan it that way, and only noticed it this week. Poetic. And wrong. All of it is wrong. I did everything right. And it still turned out wrong. So vastly, unfairly, cosmically hugely WRONG. 

I would have been feeling so much emotion, joy, fear, anticipation, worry, love. I would have been expecting so much. 

I would have still been expecting. 

Now Im not. In every way. 

with love, lissa